Landmark Genetic Test Protection Gains Massive Support

The information on this website is general in nature and does not take into account your objectives, financial situation, or needs. Consider seeking personal advice from a licensed adviser before acting on any information.

Prominent support has come from the Council of Australian Life Insurers alongside professionals from the medical and legal fields.

Michelle James, the national president of the Australian Lawyers Alliance, applauded the ban announced by Financial Services Minister Stephen Jones, saying it represents “great news” for consumers.

Historically, the life insurance sector regulated itself through a moratorium started in 2019, which addressed concerns that individuals might avoid genetic testing due to fear that unfavorable results could impact their ability to secure affordable life insurance.

This moratorium was indefinitely extended under revisions to the industry’s code of practice in July of last year. However, it stopped short of a complete prohibition. For example, the moratorium allowed insurers to use genetic test results if an individual's total lump sum death coverage exceeded $500,000.

According to Ms. James, “The life insurance industry’s partial, self-regulated moratorium on using genetic results has not sufficiently protected consumers. Hence, legislating to prohibit insurers from using genetic test results in life underwriting is essential.” She emphasized that this development ensures individuals can make choices about genetic testing without worrying about insurance repercussions.

Steve Robson, president of the Australian Medical Association, underscored the significant positive impact of this policy change on both consumers and the health system. He stated, “We know that the fear of being denied insurance coverage has been a major deterrent for Australians who might benefit from genetic testing.”

The decision for a legislative ban followed a Treasury consultation earlier this year, wherein three potential strategies were suggested: maintaining the status quo, enforcing a complete or partial ban, or instituting financial thresholds for insurance companies regarding the use of genetic test results.

Christine Cupitt, CEO of the Council of Australian Life Insurers, commented on the consultations, expressing the group's consistent stance on the necessity for stringent regulations to prevent anyone from avoiding genetic tests out of fear. “We have long been clear about the need for strict regulation to ensure no one is deterred from taking a genetic test to proactively manage their health,” she said.

Minister Jones' announcement of this landmark prohibition signals a significant turning point in ensuring that Australians can pursue genetic testing crucial for their health without the looming threat of insurance discrimination based on their genetic information.

Published:Tuesday, 17th Sep 2024
Author: Paige Estritori

Please Note: We do not endorse any specific products or companies. Some content is sourced from third parties, including press releases, and may not be independently verified for accuracy or completeness.

Share this news item:

Insurance News

Clear

Fruit Fly Pressure Shows Biosecurity Is a Whole-Farm Insurance Issue

11 Aug 2026: Paige Estritori

Recent rural reporting on Queensland fruit fly pressure in horticultural regions is a timely reminder that biosecurity is not only a production issue. For orchardists, vegetable growers and mixed farms with small horticulture enterprises, a pest detection can affect far more than the crop in the paddock. It can influence picking schedules, packing arrangements, transport routes, labour planning, market access and cash flow. - read more

What Rising Insurance Complaints Mean for Truck Operators

06 Aug 2026: Paige Estritori

The latest insurance complaint trends are a timely warning for Australian truck owners, owner-drivers and fleet operators: the quality of a policy matters, but so does the way a claim is handled once something goes wrong. Across the general insurance sector, complaints continue to point to recurring pressure points such as delays, disputed decisions, communication gaps and confusion about policy terms. - read more

Why AI dash cameras are becoming an insurance issue for truck fleets

05 Aug 2026: Paige Estritori

The latest fleet technology coverage points to a clear shift in Australian transport: AI-enabled dash cameras, telematics and connected maintenance platforms are moving from optional extras to everyday risk-management tools. For truck operators, the insurance implications are becoming harder to ignore. - read more

NSW Workers Compensation Pressure Puts Tradie Employers on Notice

05 Aug 2026: Paige Estritori

Fresh attention on New South Wales workers compensation pricing is a timely reminder that insurance costs are not moving evenly across Australia. While some trade employers in other states have recently gained breathing room, NSW businesses are still operating in a market where scheme sustainability, claims duration and workplace injury trends remain under scrutiny. - read more

What Genetic Testing Reform Could Mean for Income Protection Applicants

05 Aug 2026: Paige Estritori

Australia’s move to restrict the use of adverse genetic test results in life insurance underwriting is an important development for people who have been hesitant to explore personal cover. While the reform is usually discussed in relation to life insurance, it also matters for income insurance because many retail policies sit within the broader life insurance framework. - read more

Click for more Insurance News